Alec’s mission
There are few places both as hopeful and as heartbreaking as a children’s hospital, especially around the holidays. While there are many, chances are you may know Shriners Hospitals for Children because of one very special patient.
There are few places both as hopeful and as heartbreaking as a children’s hospital, especially around the holidays. While there are many, chances are you may know Shriners Hospitals for Children because of one very special patient.
My daughter has the same condition. Sixty fractures isn’t uncommon and many of them are absolutely horrifying. I’ve seen 45 degree displacement mid femur a few times. The term Brittle Bone Disease is misleading. It’s a disease of the connective tissue collagen so bones, muscle, tendons, ligaments, skin, organs, are are structurally and functionally weaker. Most deaths related to Osteogenesis Imperfecta aren’t due to fractures. It’s usually a respiratory issue which has made the COVID pandemic a terrifying ordeal.
“I was born with glass bones and paper skin”
This is all very well and good until he starts causing disasters to find Bruce Willis.
He just seems to radiate joy!
Majorly cool dude.
“It was because of the kids… They called me ‘Mr. Glass…’”
It’s been crazy to see him grow up through those commercials. I don’t see many ads nowadays and saw one the other day with him and did a double take with how old he looks.
There is a Shriners children’s hospital in my city. They take insurance, but also host clinics to treat kids that can’t pay. My son went for a spine issue that turned out to be nothing. It was easy because we were local but many families traveled far just for a once a month clinic (having to book hotels for a 7am clinic visit).
It’s a really good cause if you are ever looking for something to support.
I just want my adowable blanket.